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I’m so sorry your sister and your family have experienced such a nightmare. It’s great she has a solid team of medical providers, but it’s also unfun to be in a position of learning along side the doctors with no truly helpful treatments or relief available.

I’ve been dealing with long Covid since summer of 2021. My case is far from the most extreme, and it’s still been hell. The fatigue and POTS forced me to fold my dog walking business and give up my favorite activities— the gym and going out dancing. On the good days, dismissal of long Covid is frustrating. On the bad, it sends me into a near homicidal, “ache like I ache” rage. So I’ll probably skip this segment, too.

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